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  1. About Neuroblastoma
  2. Resources

Additional Information and Support

More in-depth information regarding the childhood cancer neuroblastoma can be found through the following sites.

We also have a range of family specific services listed in our Related Support Resources area and you can download a copy of our Neuroblastoma Fact Sheet here. 

Parent's and carers may also wish to read our Parents' Guide to Neuroblastoma.

Information  

  • PDQ® Pediatric Treatment Editorial Board. PDQ Neuroblastoma Treatment. Bethesda, MD: National Cancer Institute (NCI) USA.
  • Australian Government Children’s Cancer Website
  • Children’s Cancer Institute (Australia)
  • American Cancer Society (USA)
  • Neuroblastoma Society (UK) 
  • Cure Search (USA)
  • The Advances in Neuroblastoma Research Association
  • Cancer Advisor (an Australian website that connects to up-to-date, evidence-based information about childhood cancer)
  • A Summary of Childhood Cancer Statistics in Australia (from 1983 to 2014) produced by QLD Cancer Council
  • The Cancer Council Australia. Call the Cancer Council Helpline from anywhere in Australia for the cost of a local call on 13 11 20.
  • Children’s Cancer and Leukemia Group (CCLG UK) - large range of downloadable and free publications .
  • International Society for Pediatric Oncology 

Camp Quality 

Camp Quality is a much-loved Australian charity that supports families with a child aged 0-15 years dealing with either their own cancer diagnosis or the diagnosis of a sibling or parent.  

The charity’s mission is to help kids and their families build optimism and resilience towards their cancer experience – through community, education, and a huge dose of fun.  

Family Camps

Camp Quality Family Camps give families much-needed time back—to relax, reconnect, and share stories with others going through something similar. These camps help build strength and resilience, and often lead to friendships that last well beyond the weekend. With amazing volunteers keeping the kids entertained and safe, parents get a chance to unwind, too. They’re also a great way to support kids who are impacted by a loved one’s cancer—like a parent, carer, or sibling—so they don’t miss out on those fun, carefree moments every child deserves.

Family Getaways

Family Getaways are designed for any Camp Quality family needing a breather from the intensity of the cancer experience. The Getaways offer families a chance to unwind and reconnect—whether taking a break from hospital life or enjoying time together after treatment. These restful retreats are held in holiday-style accommodation in locations around the country, with everything taken care of so families can simply focus on quality time together.

Camp Quality also run additional services and programs, including:  virtual camps, family fun days, therapy, and hospital puppet playdates.

For more information follow the link below:

Camp Quality Services

 

Cancer Hub 

Cancer Hub is a resource funded by the federal government. 

Cancer Hub is a single space where families impacted by cancer can easily access the practical and emotional support services they need, when they need. 

Cancer doesn’t only affect the person diagnosed, it also affects every member of the family. Although there is a lot of community-based support available to families, it can sometimes be confusing or time-consuming to find out what types of support are available. This is where Cancer Hub steps in. 

Families (with children aged 0-25) can easily access a range of cancer support services including:

·      Cancer counselling

·      Cancer support events

·      Financial Assistance

·      Family Retreats

Once a call is made to Cancer Hub, specially trained staff take care of the rest by identifying every family members’ needs and helping them access the best support options.

Read more about Cancer Hub and a case study showing how the service navigation works with a real life example: https://www.canteen.org.au/about-us/news-reports/news/cancer-hub-the-story-so-far

To get in touch with the Cancer Hub team, follow this link: https://cancerhub.org.au

Help others

If you know of a good resource that would benefit our neuroblastoma community, please contact us on [email protected] so we can add it to the list above.

Dictionary 

NCI Dictionary of Cancer Terms

Parent's Guide to Neuroblastoma

Parent's Guide to Neuroblastoma

Neuroblastoma Australia's 'Parent's Guide to Neuroblastoma' is designed to assist families with children who have been diagnosed with neuroblastoma. Read more

Published: 26th August, 2024

Updated: 4th March, 2026

Author: Victoria Birch

Coronavirus help guide

Coronavirus help guide

Visit our neuroblastoma family support area to find helpful information and resources including our Coronavirus help guide, free family activities, neuroblastoma statistics and advice for families who are newly diagnosed, on treatment, post treatment, hospital tips, support services and clinical trials. Read more

Published: 25th March, 2020

Updated: 3rd June, 2024

Author: Lynette Haines

Related Support Services

Related Support Services

It’s important to seek support from family, friends, health professionals or other services to help you, your child and your family cope with cancer. Read more

Published: 19th July, 2019

Updated: 18th February, 2026

Author:

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Latest

  • August 2026

    August 2026

    On Sunday 9 August 2026, take on Australia's most iconic fun run and help make a difference for children with neuroblastoma. Starting in Sydney's CBD at Hyde Park and finishing at Bondi Beach, City2Surf is a 14km event that brings together thousands of runners, walkers and fundraisers each year.

  • National Childhood Cancer Roadmap Recognises CAR T-Cell Therapy as a National Priority

    National Childhood Cancer Roadmap Recognises CAR T-Cell Therapy as a National Priority

    Neuroblastoma Australia has welcomed the release of the National Childhood, Adolescent and Young Adult Cancer Roadmap, describing it as an important step forward for children and families affected by cancer.

  • Neuroblastoma Australia Responds to Federal Budget Announcement

    Neuroblastoma Australia Responds to Federal Budget Announcement

    Neuroblastoma Australia is extremely disappointed the Federal Budget did not include specific funding for CAR-T Cell treatment for solid tumours - it’s a devastating omission for Australian children diagnosed with neuroblastoma.

  • Oaten's | Raising funds for research into neuroblastoma

    Oaten's | Raising funds for research into neuroblastoma

    I'm fundraising for Neuroblastoma Australia, to raise funds for vital research into better, kinder and more effective treatments for the children's cancer neuroblastoma. Please show your support by donating via this page.

Most read

  • What is neuroblastoma?

  • Donate today

    Donate today

    One in two children with aggressive neuroblastoma will not survive. Neuroblastoma is the number one toddler cancer. We need your help to find effective treatments. Donate today to support world class Australian research into developing less toxic, more effective treatments, with the ultimate goal of finding a cure. Donate as an individual or business and receive a tax-deductible receipt for all donations over $2.

  • Detection, diagnosis & staging

    Detection, diagnosis & staging

    Know about symptoms of neuroblastoma, detection, diagnosis and different stages of neuroblastoma childhood cancer.

  • How common is neuroblastoma?

  • How dangerous is neuroblastoma?

  • Our Story

    Our Story

    Neuroblastoma takes the lives of more children under five than any other cancer. Help us fund new research to find a cure within our lifetime and save toddlers' lives.

  • How is it diagnosed?

  • Why does this cancer form?

  • Golf2Cure 2025

    Golf2Cure 2025

    Our 2025 charity golf day, Golf2Cure, will take place on Thursday, June 26 at the prestigious Lakes Golf Club at Eastlakes, Sydney. The aim of the day is to have fun, increase awareness of neuroblastoma, and to raise funds for research into this devastating childhood cancer so we can find treatments that are more effective and less toxic. 

  • Key Statistics

    Key Statistics

    Know key statistics about the childhood cancer, neuroblastoma. Neuroblastoma is the most common solid tumour of childhood and its treatment. Most neuroblastomas, made up of cells found in nerve tissues of the body, start in the adrenal glands.

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Neuroblastoma Australia Suite 402, 161 Walker St, North Sydney, NSW 2060
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