Related Support Services

It’s important to seek support from family, friends, health professionals or other services to help you, your child and your family cope with cancer.

Your child’s treatment team can assist you to access support services and we have listed a range of options below. For additional specific information about childhood cancer, contact any of the major children’s hospitals and networks in your state or territory.

Visit our Connecting with other families area for ideas on how to get involved with our neuroblastoma community.

Children's Cancer Foundation has developed a Family Support Alliance directory to connect families of children with cancer to services and information provided by credible not-for-profit organisations.

Information about neuroblastoma (from Neuroblastoma Australia)

Our Parent's Guide to Neuroblastoma is designed to help parents and carers following their child’s diagnosis and give specific information about neuroblastoma, its treatment and possible side effects. You can access the guide below. If you would like a hard copy of the guide, please email us at [email protected]

Parent's Guide to Neuroblastoma

Information about neuroblastoma (Australian)

Australian Government Children’s Cancer Website
Neuroblastoma Downloadable Fact Sheet from the Australian Government
Children’s Cancer Institute
Living with Children’s Cancer
Cancer Advisor
Centre for Genetics Education
Kids guide to cancer App from Camp Quality
John Hunter Children’s Hospital Cancer Service
Key points to know about neuroblastoma PDQ Neuroblastoma Treatment

Information about neuroblastoma (International)

CureSearch (US) - Neuroblastoma in Children information area
National Cancer Institute (US) - Children with Cancer: A Guide for Parents
Children's Oncology Group Family Handbook
PDQ® Pediatric Treatment Editorial Board. PDQ Neuroblastoma Treatment. Bethesda, MD: National Cancer Institute (NCI) USA.
Patient information publications from the National Cancer Institute including Children with Cancer: A Guide for Parents
St Baldrick's Foundation - what is neuroblastoma article
What Is Neuroblastoma? American Cancer Society
Key Statistics About Neuroblastoma American Cancer Society
What’s New in Neuroblastoma Research? American Cancer Society
Neuroblastoma survival rates based on risk groups American Cancer Society
About and key statistics downloadable PDF - American Cancer Society
American Cancer Society’s Cancer Statistics Center - American Cancer Society
American Cancer Society
American Cancer Society - questions to ask your child’s cancer care team
Neuroblastoma Society (UK)
Neuroblastoma Parent Handbook - Neuroblastoma UK
Cure Search (USA)
The Advances in Neuroblastoma Research Association
The Neuroblastoma Consortium (Global)
The Children’s Neuroblastoma Cancer Foundation (USA)
Neurobla stoma a Handbook for Familie s - Association of Pediatric Oncology/Haemotolgy Nurses
Children’s Cancer and Leukemia Group (CCLG UK) - large range of downloadable and free publications
The Children’s Oncology Group (based in USA)
eBook Lucy has a Tumour - UK charity CLIC SARGENT
International Society for Pediatric Oncology
Grace Kelly Childhood Cancer Trust - (based in UK) - download booklets for children

Family Support Alliance

https://www.childrenscancersupport.com.au

Family related information from the Cancer Council

What is cancer? Cancer Australia
Key statistics Cancer Australia
Australian Childhood Cancer Statistics - Cancer Council (QLD)
Cancer Australia’s National Cancer Control Indicators website - how common is childhood cancer
The Cancer Council Australia. Call the Cancer Council Helpline from anywhere in Australia for the cost of a local call on 13 11 20.
A Summary of Childhood Cancer Statistics in Australia (from 1983 to 2014) produced by QLD Cancer Council
Cancer Council (NSW - talking to kids about cancer)
Cancer Council (QLD - cancer in the school community)
Cancer Council (TAS - children, adolescents and young adult services)
Cancer Council (SA - counselling and mindfulness)
Cancer Council (WA - services and programs)
Cancer Council (NT - online resources)
Cancer Council (ACT - information and support)
Cancer Council (VIC - during and after childhood cancer

Information from Australian Hospitals

Peter Mac Cancer Centre (VIC) Paediatric Oncology
The Royal Children’s Hospital Melbourne (Chronic illness and school)
The Royal Children’s Hospital Melbourne (What do I tell my friends?)
Paediatric Integrated Cancer Service (Coming off treatment parent handbook)
Kids Cancer Service John Hunter Hospital
Cancer Centre for Children, Children’s Hospital Westmead information includes:

Women’s and Children’s Hospital Adelaide:

Childhood cancer Information for you and your family resource area
Neuroblastoma Fact Sheet

Podcast - Dr Geoff - Dr Geoff from Westmead hospitals podcasts. He explains treatment well and particularly each drug.

Financial and emotional support

Make a Wish: Delivering incredible experiences for affected children and their families
Red Kite: Support and information for children and young people with cancer and their families.
Kids Guide to Cancer App: Free app that supports kids who have a parent, sibling, friend, or loved one with cancer.
Starlight Foundation: Wishgranting for seriously ill children and their families,
Livewire: Livewire is an online community specifically for teens (aged 12-20) living with a serious illness, disability or chronic health condition. 12 to 20 years
Hoxby: Global freelance agency offering remote and flexible paid work options

Camp Quality

Camp Quality offer services and programs specifically designed to help children aged 0-13 (and their families) cope with the daily ups and downs of dealing with cancer including family fun days, school education and support services, including:

1. Family Camps: Camp Quality Family Camps give families much-needed time back—to relax, reconnect, and share stories with others going through something similar.
2. Family Getaways: Family Getaways are designed for any Camp Quality family needing a breather from the intensity of the cancer experience.
3. Day-trips: Fun day outings to places such as Raging Waters
4. Emergency Respite Program: For families experiencing severe mental distress following a cancer diagnosis or facing the heartbreaking reality of a child or parent’s palliative care or bereavement.

Palliative care and bereavement support

NSW Paediatric Palliative Care Programme
Australian Paediatric Palliative Care
Feel The Magic Foundation (childhood bereavement support)
Support with grief and bereavement (Redkite)
Video for bereaved parents (Redkite)
Connect group for bereaved parents (Redkite)
Sydney Children’s Hospital Bear Cottage - family support services:

Books

Redkite Bookclub - Books about cancer for children, parents and medical professionals.
Cancer Advisor - Reliable information for families of children with cancer, and young people under 25 with a diagnosis.
Book - Childhood Cancer: A Parent’s Guide to Solid Tumour Cancers
Book - My Cancer by Angus Olsen
Bereavement books for children - Grace Kelly Childhood Cancer Trust

If you have had a good experience with a support service and think that other families would benefit, please email us at [email protected].

Give a gift to a child with neuroblastoma

Brighten a child's day - for as little as $59, you can gift a child with neuroblastoma a fun Activity Pack to keep them entertained and engaged whilst isolated indoors at home or in hospital.

Latest

August 2026

On Sunday 9 August 2026, take on Australia's most iconic fun run and help make a difference for children with neuroblastoma. Starting in Sydney's CBD at Hyde Park and finishing at Bondi Beach, City2Surf is a 14km event that brings together thousands of runners, walkers and fundraisers each year.
National Childhood Cancer Roadmap Recognises CAR T-Cell Therapy as a National Priority

Neuroblastoma Australia has welcomed the release of the National Childhood, Adolescent and Young Adult Cancer Roadmap, describing it as an important step forward for children and families affected by cancer.
Neuroblastoma Australia Responds to Federal Budget Announcement

Neuroblastoma Australia is extremely disappointed the Federal Budget did not include specific funding for CAR-T Cell treatment for solid tumours - it’s a devastating omission for Australian children diagnosed with neuroblastoma.
Oaten's | Raising funds for research into neuroblastoma

I'm fundraising for Neuroblastoma Australia, to raise funds for vital research into better, kinder and more effective treatments for the children's cancer neuroblastoma. Please show your support by donating via this page.

Parent's Guide to Neuroblastoma

Neuroblastoma Australia's 'Parent's Guide to Neuroblastoma' is designed to assist families with children who have been diagnosed with neuroblastoma.
Coronavirus help guide

Visit our neuroblastoma family support area to find helpful information and resources including our Coronavirus help guide, free family activities, neuroblastoma statistics and advice for families who are newly diagnosed, on treatment, post treatment, hospital tips, support services and clinical trials.

What is neuroblastoma?
Donate today

One in two children with aggressive neuroblastoma will not survive. Neuroblastoma is the number one toddler cancer. We need your help to find effective treatments. Donate today to support world class Australian research into developing less toxic, more effective treatments, with the ultimate goal of finding a cure. Donate as an individual or business and receive a tax-deductible receipt for all donations over $2.
Detection, diagnosis & staging

Know about symptoms of neuroblastoma, detection, diagnosis and different stages of neuroblastoma childhood cancer.
How common is neuroblastoma?
How dangerous is neuroblastoma?
Our Story

Neuroblastoma takes the lives of more children under five than any other cancer. Help us fund new research to find a cure within our lifetime and save toddlers' lives.
How is it diagnosed?
Why does this cancer form?
Golf2Cure 2025

Our 2025 charity golf day, Golf2Cure, will take place on Thursday, June 26 at the prestigious Lakes Golf Club at Eastlakes, Sydney. The aim of the day is to have fun, increase awareness of neuroblastoma, and to raise funds for research into this devastating childhood cancer so we can find treatments that are more effective and less toxic.
Key Statistics

Know key statistics about the childhood cancer, neuroblastoma. Neuroblastoma is the most common solid tumour of childhood and its treatment. Most neuroblastomas, made up of cells found in nerve tissues of the body, start in the adrenal glands.